July 2, 2014 - Tacen's 4th birthday. We had a good, but hard day, as was expected! We got up that day and had breakfast, banana pancakes, Tacen liked pancakes. Then we got ready and headed out to the splash park in Collierville. This was a favorite of Tacen's. Really anything with water brought a huge smile on his face!!! He always loved the water!
We had fun running around in the water and playing with Daxon. He enjoyed it. Sweet Iszella just slept in her carseat until it was time to eat. Then she ate and hung out in the front carrier, she was a trooper especially in the heat! We ended off at the park before heading home for naps.
During nap time Cade picked up some blue balloons and we got showered. Once Daxon got up we headed into Lebonhuer. We went up to Bunny Lane and dropped off the toys our friends and family had given us to donate. I sadly didn't take any pictures.
We decided while we were at Le Bonhuer that we'd go to our Neurologist, Dr. Fulton's office and pick up Tacen's medical records. Dr. Fulton had also asked us to periodically give him an update on how Daxon was doing, since we never did find out what exactly Tacen had and there's no guarantee our other children won't have the same thing. Cade had been wanted to email Dr. Fulton a video showing how incredibly mobile Daxon really is.
While we were there I thought of our nurse, Lana who was a great connection in getting messages to Dr. Fulton and helping us get past the front desk. Cade asked for her or Dr. Fulton and she came out. We explained that we wanted to see if we could get an email or something to show Dr. Fulton Daxon. She proceeded to say, "oh, he's right here let me go get him!" They both came back out. They both remembered us well (which is slightly surprising since it had been almost two years since we'd been in and I'm certain they've seen 100's if not 1000's of patients)! We sat and talked with Dr. Fulton for an hour!
He was so pleased to see how well Daxon was doing and kept saying, "I'm so glad to see him doing so well." He's expecting a baby himself in a month or two. First child! We talked about that and our plans to move. We talked about Tacen. I mentioned the
article I had seen about the children in California with their cells being slightly swollen and wondered if that was at all similar to Tacen. He said the symptoms might have been similiar, but the cause wouldn't have been. It was great to see Dr. Fulton again. He is such a kind, humble, intelligent man! We were so lucky to have him as Tacen's Dr. He even told me that he still had a note on his desk that nurse Lana had written when we called to ask some questions before Tacen was hospitalized. He said he just couldn't bring himself to throw it away, sentimental reasons. What a wonderful man. It was really lovely to see him and really added to our Tacen day!
After Le Bonhuer we came home and had Italian Chicken for dinner with rice. In honor of Tacen loving rice, then we blew out the candles on Tacen's cake, let off the balloons and enjoyed the cake while watching our Tacen video and picture slide show we made. We reminisced about our sweet boy. We miss him and wish so much that he was still here with, but we will be eternally grateful for the way he touched our lives and that we will be with him again. It was a nice day to remember our special boy and celebrate him!
